Most of us with MALS ( Median Arcuate Ligament Syndrome , also known as Celiac Artery Compression Syndrome) got so sick that when we were finally diagnosed, we were seriously grateful to not feel crazy anymore. After years of unexplained malnourishment, pain, and fatigue, the medical community actually presented us with a fix, albeit a serious one: open abdominal surgery. Surgery for MALS is a big deal. It is similar in procedure to an Abdominal Aortic Aneurism (AAA) repair - and in fact, some folks with MALS end up with aneurisms that need repairing - but with the added trauma of clipping the median arcuate ligament back to the spine (which involves lifting and spreading the ribcage - ouch!), and snipping a bunch of damaged nerves that are part of the largest nerve bundle in the autonomic nervous system and innervate most of the digestive tract (the celiac ganglion). Once all that happens, and surgical recovery gets less hellish (and it is ROUGH), it's on to phase 2: tea
Homeschooling Mother of three taking the time to ruminate on what makes a life.